久久亚洲国产成人影院-久久亚洲国产的中文-久久亚洲国产高清-久久亚洲国产精品-亚洲图片偷拍自拍-亚洲图色视频

Global EditionASIA 中文雙語Fran?ais
Lifestyle
Home / Lifestyle / Health

Strong heart triumphs over delicate-bone condition

China Daily | Updated: 2023-07-15 12:44
Share
Share - WeChat

TIANJIN — Wei Ruihong's struggles began a mere 28 days after her birth when she suffered her first fracture, and by the time she was 43, she had endured a staggering total of 31 fractures. With a rare genetic disease known as osteogenesis imperfecta, which renders her bones as fragile as glass, Wei, standing just 1.2 meters tall, has forged a resilient life that radiates with a brilliance akin to diamonds.

Surmounting numerous challenges, she completed the self-taught higher education examinations within a year and a half. Not stopping there, Wei authored two books, extended her support to thousands of families affected by rare diseases, and shared her optimistic and positive outlook on life with tens of thousands of individuals through psychological counseling.

"Just 28 days after my birth, I fractured my left arm, and soon I was diagnosed with osteogenesis imperfecta, often referred to as a'porcelain doll' condition," says Wei, from Guangping county, Hebei province.

Doctors initially predicted that Wei's life expectancy would be a mere 11 or 12 years. They went so far as to suggest that her family should consider giving up.

"My grandfather was filled with fury upon hearing that. He said that his beloved granddaughter deserved to receive proper care and attention," she recalls.

Reflecting on her struggles, Wei described how pain permeated her childhood. She remembers a particular incident when she was just 5 years old. "I tried to break a baked wheat cake, but to my dismay, my thumb ended up breaking along with it," she recalls.

The pain that sounds tormenting is actually the easiest kind of difficulty faced by people with such conditions. Because of limited mobility, physical fragility and stigma, many patients can only stay at home.

"My family has always made me believe that I am not defined by my illness. They have treated me like any other child except that I was short and unable to walk," Wei says. "My mother sent me to school and told me to listen to the teachers attentively, while my grandfather always took me to the theater and greeted everyone he met with enthusiasm."

Wei says that during her time as a student, she was fortunate to have encountered no discrimination from her classmates. She ranked top in the senior middle school entrance exam. "But I had to drop out of school due to physical limitations, which came as a significant blow," Wei says, adding that she found herself crying every day.

One transformative moment came when Wei's schoolteacher paid her a visit. She brought a basin of water and imparted a profound piece of advice. "'Shed all your tears today, then wash your face and reflect on how to navigate your future.' My teacher told me tears would only cloud my vision and prevent me from seeing the path ahead," Wei says.

Wei completed all 16 courses and earned a college diploma in psychology, and acquired qualification certificates, as a national psychological counselor.

"Once, I forgot to notify the exam authorities in advance, and no tables and chairs tailored to my height were arranged. I improvised by placing my bag filled with books and sat on it, which allowed me to write comfortably," she says.

"This incident struck a chord with me and I felt it mirrors my life. Being ill and physically challenged does not mean I am incapable. I must rise on my tiptoes to achieve my goals."

Wei then moved to Beijing to offer counseling services to patients at the China-Dolls Center for Rare Disorders. "My own experience with illness made me more empathetic, and my phone has become a psychological hotline. Even normal people reach out to me to seek guidance," Wei says.

In 2012, Wei completed a 150,000-word autobiography. The following year she joined the department of osteogenesis imperfecta at a hospital in Tianjin, and established the Sunshine Counseling Center for Rare Disorders to help more people. To promote employment opportunities for this special group, the center has introduced various courses, specializing in areas such as social work and psychology. It also regularly organizes handicraft classes and charity sales.

"Those with disabilities ... possess the potential to be a source of inspiration for others," she says.

Xinhua

Most Popular
Top
BACK TO THE TOP
English
Copyright 1995 - . All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co (CDIC). Without written authorization from CDIC, such content shall not be republished or used in any form. Note: Browsers with 1024*768 or higher resolution are suggested for this site.
License for publishing multimedia online 0108263

Registration Number: 130349
FOLLOW US
 
主站蜘蛛池模板: 欧美人成在线观看网站高清 | 99re久久精品国产首页2020 | 亚洲国产精品网站久久 | 成人自拍小视频 | 扒开双腿猛进入喷水免费视频 | 国产一级片免费观看 | 国产成人www免费人成看片 | 国产成在线观看免费视频成本人 | 美女张开腿让男人捅爽 | 一级片视频免费观看 | 久久综合久久美利坚合众国 | 99爱视频99爱在线观看免费 | 欧美日韩亚洲另类 | 欧美色久 | 色拍拍在精品视频69影院在线 | 一级色网站 | 国产免费人成在线看视频 | 国产欧美一区二区三区免费看 | 免费特黄| 国产特级全黄一级毛片不卡 | 国产成人精品aaaa视频一区 | 久久免费观看国产精品 | 国产步兵社区视频在线观看 | 免费a级在线观看播放 | 国产精品天天爽夜夜欢张柏芝 | 国产精品19禁在线观看2021 | 国产第四页| 视频一区色眯眯视频在线 | 久草手机视频在线 | 一区二区三区四区国产精品 | 中日韩美中文字幕 | 国产一级久久久久久毛片 | 亚洲精品高清久久 | 日韩激情无码免费毛片 | 久久香焦 | 亚洲欧美日韩综合二区三区 | 国产精品欧美亚洲日本综合 | 免费播放美女一级毛片 | 一级毛片免费观看不卡的 | 久久国产精品免费看 | 一级毛片在线免费观看 |