www射-国产免费一级-欧美福利-亚洲成人福利-成人一区在线观看-亚州成人

Global EditionASIA 中文雙語Fran?ais
Lifestyle
Home / Lifestyle / Health

Strong heart triumphs over delicate-bone condition

China Daily | Updated: 2023-07-15 12:44
Share
Share - WeChat

TIANJIN — Wei Ruihong's struggles began a mere 28 days after her birth when she suffered her first fracture, and by the time she was 43, she had endured a staggering total of 31 fractures. With a rare genetic disease known as osteogenesis imperfecta, which renders her bones as fragile as glass, Wei, standing just 1.2 meters tall, has forged a resilient life that radiates with a brilliance akin to diamonds.

Surmounting numerous challenges, she completed the self-taught higher education examinations within a year and a half. Not stopping there, Wei authored two books, extended her support to thousands of families affected by rare diseases, and shared her optimistic and positive outlook on life with tens of thousands of individuals through psychological counseling.

"Just 28 days after my birth, I fractured my left arm, and soon I was diagnosed with osteogenesis imperfecta, often referred to as a'porcelain doll' condition," says Wei, from Guangping county, Hebei province.

Doctors initially predicted that Wei's life expectancy would be a mere 11 or 12 years. They went so far as to suggest that her family should consider giving up.

"My grandfather was filled with fury upon hearing that. He said that his beloved granddaughter deserved to receive proper care and attention," she recalls.

Reflecting on her struggles, Wei described how pain permeated her childhood. She remembers a particular incident when she was just 5 years old. "I tried to break a baked wheat cake, but to my dismay, my thumb ended up breaking along with it," she recalls.

The pain that sounds tormenting is actually the easiest kind of difficulty faced by people with such conditions. Because of limited mobility, physical fragility and stigma, many patients can only stay at home.

"My family has always made me believe that I am not defined by my illness. They have treated me like any other child except that I was short and unable to walk," Wei says. "My mother sent me to school and told me to listen to the teachers attentively, while my grandfather always took me to the theater and greeted everyone he met with enthusiasm."

Wei says that during her time as a student, she was fortunate to have encountered no discrimination from her classmates. She ranked top in the senior middle school entrance exam. "But I had to drop out of school due to physical limitations, which came as a significant blow," Wei says, adding that she found herself crying every day.

One transformative moment came when Wei's schoolteacher paid her a visit. She brought a basin of water and imparted a profound piece of advice. "'Shed all your tears today, then wash your face and reflect on how to navigate your future.' My teacher told me tears would only cloud my vision and prevent me from seeing the path ahead," Wei says.

Wei completed all 16 courses and earned a college diploma in psychology, and acquired qualification certificates, as a national psychological counselor.

"Once, I forgot to notify the exam authorities in advance, and no tables and chairs tailored to my height were arranged. I improvised by placing my bag filled with books and sat on it, which allowed me to write comfortably," she says.

"This incident struck a chord with me and I felt it mirrors my life. Being ill and physically challenged does not mean I am incapable. I must rise on my tiptoes to achieve my goals."

Wei then moved to Beijing to offer counseling services to patients at the China-Dolls Center for Rare Disorders. "My own experience with illness made me more empathetic, and my phone has become a psychological hotline. Even normal people reach out to me to seek guidance," Wei says.

In 2012, Wei completed a 150,000-word autobiography. The following year she joined the department of osteogenesis imperfecta at a hospital in Tianjin, and established the Sunshine Counseling Center for Rare Disorders to help more people. To promote employment opportunities for this special group, the center has introduced various courses, specializing in areas such as social work and psychology. It also regularly organizes handicraft classes and charity sales.

"Those with disabilities ... possess the potential to be a source of inspiration for others," she says.

Xinhua

Most Popular
Top
BACK TO THE TOP
English
Copyright 1995 - . All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co (CDIC). Without written authorization from CDIC, such content shall not be republished or used in any form. Note: Browsers with 1024*768 or higher resolution are suggested for this site.
License for publishing multimedia online 0108263

Registration Number: 130349
FOLLOW US
 
主站蜘蛛池模板: 欧美精品做人一级爱免费 | 精品国产一区二区在线观看 | 一级毛片免费不卡在线视频 | 国产成人a一区二区 | 国产大陆亚洲精品国产 | 国产亚洲精品久久久久久无 | 中日韩一区二区三区 | 欧美 亚洲 在线 | 91伊人影院 | 久久国产精品久久精 | 久久www免费人成_看片高清 | 久久伊人精品热在75 | 97操碰 | 91精品日本久久久久久牛牛 | 成年人黄视频在线观看 | 97成人精品视频在线播放 | 日韩美一区二区三区 | 性欧美视频a毛片在线播放 性欧美一级 | 亚洲免费网址 | 99久久精品国产一区二区成人 | 国产精品久久久久久久久久久久久久 | 免费看岛国视频在线观看 | 无遮挡一级毛片私人影院 | 天堂va欧美ⅴa亚洲va一国产 | 久久国产精品无码网站 | 日韩亚洲一区中文字幕 | 欧美日韩国产亚洲综合不卡 | 国产精品免费视频一区 | 亚洲一区二区三区影院 | 久久综合网址 | 国产成人一区二区三区免费观看 | 国产三级国产精品国产国在线观看 | 欧美成人亚洲高清在线观看 | 亚洲一区免费在线 | 成人在线综合网 | 日本一级高清片免费 | 最新亚洲国产有精品 | 国产成人a视频在线观看 | 日本a级特黄三级三级三级 日本a一级片 | 日本aaaa片毛片免费 | 91最新网站 |